Finn in the media
Everything that has been published about Finn – and everything editors need for their own coverage.
Publications
Hoffnung und offene Fragen: Was eine Gentherapie beim vierjährigen Finn leisten könnte
Anne Burk's second article explains what gene therapy means for SLC6A1, what research already knows and which questions remain open (in German).
Read article →Waldbronner Familie braucht eine Million für Gentherapie ihres vierjährigen Sohnes
Anne Burk visited us in Waldbronn and tells Finn's story: the rare mutation, the hope for a therapy in the USA and why we are going beyond our financial limits for it (in German).
Read article →Key facts at a glance
Your contact is Finn’s father, David Wulf. For interviews, photos or background talks, reach him by email. We are happy to provide photos of Finn and the family for coverage – please ask first.
- Who
- Finn Wulf, 4, from Waldbronn near Karlsruhe; parents Bertille and David Wulf, brother Milo
- Diagnosis
- SLC6A1-related neurodevelopmental disorder, extremely rare; genetically confirmed in February 2025
- Timeline
- First tremor episodes January 2023; epilepsy diagnosed June 2024 (Städtisches Klinikum Karlsruhe); more than 200 absence seizures a day before the first medication
- Hope
- Gene therapy; not available in Germany, treatment in the USA, cost around €1 million
- Fundraising
- Goal: around €1 million for the treatment, first milestone €250,000 (GoFundMe “Finn macht Mut”). Private fundraiser, no tax receipts. Art card campaign “Create to help” on Ulule, proceeds go to the fundraiser
- Promise
- If gene therapy doesn’t happen (not enough money or too much risk), all donations go to SLC6A1 Deutschland e.V. or SLC6A1 Connect. Finn’s father David Wulf sits on the board of SLC6A1 Deutschland.
Events
Fundraising events for Finn
Benefit concert for Finn
The Musikverein Edelweiß Busenbach invites you to its church concert at St. Katharina – this time as a benefit concert for Finn.
Visit the Musikverein →Etzenrot parish bazaar
The Etzenrot parish told Finn’s story at its harvest festival service. The proceeds of its bazaar go to Finn.
Research
SLC6A1 symposium
Another SLC6A1 symposium is planned before the epilepsy congress in Amsterdam. Date and venue are still to be confirmed.
International Epilepsy Congress in Amsterdam
The ILAE’s 37th International Epilepsy Congress brings together researchers and doctors from around the world. We plan to be there.
About the congress →International Epilepsy Congress in Lisbon
The ILAE’s 36th International Epilepsy Congress took place in Lisbon right after the SLC6A1 symposium.
About the congress →SLC6A1 symposium in Lisbon
At the first European SLC6A1 symposium and family conference, researchers presented their latest results and met families. We were there.
About the event →Who supports us
- Musikverein Edelweiß Busenbach Benefit concert for Finn on 21 November 2026
- Kirchengemeinde Etzenrot Bazaar for Finn on 22 November 2026
- Stelzenmännchen Förderverein für krebskranke Kinder Karlsruhe e.V.